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Please look immediately below the
Web Resource section for information on current scholarships,
applications, baseball, soccer, etc.
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Pilot Parents of
Southern Arizona
is
providing
One to One Consultations
on
Your Child's IEP
By Appointment
This is a time
where most of your questions or issues can be addressed by an
educational consultant. Schedule your appointment by
calling the numbers below. If you are not in Pima County,
a phone conference can be held using our toll free number.
Call 520-324-3157 for English appointment
Call 520-324-3155 for Spanish appointment
Toll Free: 1-877-365-7220
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Pilot Parents of
Southern Arizona
is
providing
Parent
Information Trainings and Workshops
Parent-oriented trainings and workshops are available to parent
groups, schools, colleges, universities, service providers,
agencies and local community organizations.
These FREE
sessions can be tailored to the timeframe and needs of the
audience. Various resources are provided to participants
and can include: informational documents, websites,
contact information for support organizations and awareness
activities.
Click
here for a list of
workshops available in English.
Click
here for a list of workshops
available in Spanish.
For additional information or to schedule a training/workshop,
contact Pilot Parents by calling
520-324-3157
or email to
robert@pilotparents.org
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Web Resources for
Special Needs Resources
Arizona
Center for Disability Law
www.azdisabilitylaw.org
(pull down the
self-advocacy guides)
Arizona
Deafblind Project
http://www.azdb.net/
(a resource for parents of children who have combined
vision and hearing losses)
Arizona
Department of Education
Parent Information Network
(includes links to their
quarterly newsletter)
www.ade.az.gov/ess/pinspals/
Arizona Hands
& Voices
www.azhv.org
(support for families of children who are deaf or hard of
hearining)
Bella Online
Special Education Site
http://www.bellaonline.com/site/specialeducation
Being
uniquely gifted
www.gotothebug.com
Brain Injury Association of Arizona
http://www.biaaz.org/bia/index.aspx
The Cadre Caucus
http://www.directionservice.org/cadre/
The National Center on Dispute Resolution on Special Education's
web site
(have free email newsletter)
Children's
Clinics for Rehabilitative Services
www.childrensclinics.org
Council for
Exceptional Children
www.cec.sped.org
Enhancing
Arizona's Parent Networks
www.azeapn.org
Families and
Advocates, Partners for Education (FAPE)
www.fape.org
IDEA Website
http://idea.ed.gov
Juvenile Diabetes Research
Foundation Southern Arizona Branch
www.jdrf.org/southernarizona
MIKID (Mentally Ill Kids in
Distress)
www.MIKID.org
National
Bullying Prevention Website
www.pacerkidsagainstbullying.org
National
Center on Secondary Education and Transition
www.ncset.org
National Down
Syndrome Congress
www.ndsccenter.org
National Early Childhood Technical
Assistance Center
www.nectac.org
NICHCY
www.nichcy.org
PlayAbility
Toys (Special Toys for Special Kids)
http://www.playabilitytoys.com/
SANDS
(Southern Arizona Network for Downs Syndrome)
www.sandsaz.org
This site includes a
link to their calendar of events
Spina Bifida
Association's Preparations web sire
www.sbuniversity.org
A useful resource for
both parents and providers
Tucson
Exceptional Parent Project
www.theepp.org
Wrightslaw
www.wrightslaw.com
Yellow Pages
for Kids
(help finding services)
www.yellowpagesforkids.com/help/az.htm
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AYSO VIP
Soccer
A Soccer
Program for Players with Special Needs
This is an
adapted program for players with mental and/or physical
challenges that prohibit success on a mainstream soccer team.
Focus is on fun, success, learning, and teamwork!
There are 2 VIP Soccer
Leagues in the Greater Tucson Area:
EAST is AYSO Region 217
Play is on Saturday mornings at Freedom Park, 29th Street east
of Swan
from September 24 thru November 19th
Players for this Region are suggested 12 years and up.
Contact Nellie Sprunt 762-5903 for more information
WEST is AYSO Region 206
Play is on Saturday morning at Denny Dunn Park, 4400 W
Massingale Rd
from September 10 thru November 12th
Players at 5years old and up thru adult.
Contact Scott Hodgkinson at
scotth@inland-group.com or (520) 237-0918
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Project
Focus:
an Educational Opportunity
Project
FOCUS is an exciting educational opportunity for students 18
years and older who qualify for AIMS-A and have not yet
fulfilled graduation requirements in core credit areas.
Project FOCUS is a collaboration with the University of Arizona
and the TUSD school district. This opportunity is open to
current TUSD students who meet the program requirements and also
to students currently enrolled in other districts who plan to
enroll in TUSD through the open enrollments process.
Students will not be placed on a TUSD campus, but will be full
time students receiving services on the University of Arizona
campus. The deadline for applying has been extended.
For
additional information please click
here
or contact Dan Perino Community Transition Program Coordinator
at 520-232-8430
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TACT -
Technology Access Center of Tucson
...connects
people with disabilities to the technology they need for
independence at home, school and work
Toy and
Equipment Loan Program
Adapted Toys
Communication Devices
Alternative Keyboards and Mice
Powerlinks
Switches
Electronic Toys
Notetakers
Lightboxes
Items can be borrowed for four week periods
(longer for some products) with our yearly loan fee of $50. Ask
us about stipends for families!
Some equipment is available from the AzTAP
loan program (no fee) for two week periods. Pick up only – no
mailings from this location.
Loan Program open Monday thru Thursday from
3-5 PM.
Please call for an appointment
Call 745-5588 ext. 1263 for appointments and
information.
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The Extreme
Parent/Family Caregiver Group
Wednesdays,
5:30pm-6:30pm
Tucson
Community Connections
Grant Plaza
(Corner of Grant & Palo Verde)
Tucson, AZ
Are you caring for,
planning with, and dreaming along with someone who is an older
teen, a young adult or an adult with a disability? If so,
the Extreme Parent/Family Caregiver Group would like you to
become involved. This group is led by family caregivers
and meets weekly as long as there is a need.
Sponsored by Pilot
Parents of Southern Arizona and the Sonoran UCEDD
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Special
Needs Information & Response
Voluntary Registration
People with
disabilities can request assistance in case of an evacuation by
complete a voluntary registration form and returning it to the
Office of Emergency Management and Homeland Security.
To get a
registration form/brochure please contact the
Pima County
Office of Emergency Management and Homeland Security
at
520-798-0600
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Supplemental
Security Income (SSI) for Children and Youth with Disabilities
The Supplemental Security Income (SSI)
program remains an important source of financial support for
low-income families of children with special health care needs
and disabling conditions. In most states, SSI eligibility also
qualifies children for the state Medicaid program, providing
access to health care services. The Social Security
Administration (SSA), which administers the SSI program,
considers a child disabled under SSI if there is a medically
determinable physical or mental impairment or combination of
impairments that results in marked and severe functional
limitations. The impairment(s) must be expected to result in
death or have lasted or be expected to last for a continuous
period of at least 12 months. The income and assets of
families of children with disabilities are also considered when
determining financial eligibility. When an individual with a
disability becomes an adult at 18 years of age, the SSA
considers only the individual's income and assets. The SSA
considers an adult to be disabled if there is a medically
determinable impairment (or combination of impairments) that
prevents substantial gainful activity for at least 12 continuous
months. SSI benefits are important for youth with chronic
conditions who are transitioning to adulthood.
Information on SSI resources can be found at
the Social Security Administration Web site:
www.ssa.gov
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FAS Parent
Support Group
First Friday
of the Month
DDD Community
Resource Center
4710 E 29th Street, Building #7
Trainings are in Building #10 (inservice room)
(Southeast cornet of Swan & 29th)
Tucson, AZ
For more information
and initial free screening call
Teresa Kellerman (520) 296-9172. |
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A new support group is
forming in Tucson
Mended Little
Hearts
(a program of The
Mended Hearts, Inc.)
Mended Little Hearts is a pediatric support program dedicated to
inspiring hope in those who care for the littlest heart patients
of all. The core goal is to connect families in crisis
with others who have survived the shock of learning a child has
a heart defect/heart disease, navigated the maze of medical
decisions and procedures, and mapped out a plan for the future.
Meetings are held the
first Tuesday of the month
6:00 pm
University Medical Center
Dining Room E (located in the cafeteria)
For more information please
contact Vanessa West at 520-406-5655
or email
TucsonAz@mendedlittlehearts.org
NOTE: Phoenix is
also forming a chapter. For information on their
planning/meetings, etc., please contact Kym Vierthaler at
kym.heartmom@yahoo.com or 480-895-8752.
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CHADD
Children and Adults
with Attention-Deficit /Hyperactivity Disorders
has a new support group
in Southeast Tucson
They holds meetings on the
3rd Thursday of each month from
7:00 pm - 8:30 pm
at
The Episcopal Church of
Saint Matthews -- Parish Hall
9701 E Old Spanish Trail
Tucson, Arizona
For more
information call 520-296-8572
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WrightsLaw
is now
offering
A WebEx Training
Center
containing a library
of training programs
Wrightslaw is
developing a library of recorded multi-media training programs
to help you become a more effective advocate for children with
disabilities. These WebEx programs are available 24/7 on
your computer.
For information on this service go to their website
http://www.wrightslaw.com/webex/index.htm
There you will
find links to download the free WebEx player and information on
available trainings and their cost.
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Military Parents of
Special Needs Kids
Support Group
for
parents in the military with children with who have special
needs
holds meetings on the
2nd Saturday of each month from
2:00 pm - 4:00 pm
For more
information contact
Rebecca Johnson at 520-269-6257
or
email her at
ndair4ce@cox.net .
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Ultima Self-Defense
and Fitness
is now
offering
Self-Defense/Physical Fitness Classes
for people
with developmental disabilities
Ultima
Self-Defense and Fitness
7649 E Speedway Blvd
Tucson, AZ
Various days and
times. Based on demand classes may be added or canceled,
please call for more information. Classes are taught by
certified Krav Maga instructors who have experience teaching
people with developmental disabilities.
For more information
contact Toni Posvistak at (520) 721-2348.
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Online
Equipment Exchange Program:
Arizona Assistive
Technology Equipment Exchange
or
azATEXchange (for short)
This is a web-based
"classified ad" format that allows individuals (not vendors) to
post assistive technology items for sale of donation or to
search for needed items. The goal is to put the AT
equipment that is not currently being used into the hands of
someone who can benefit from it.
www.azatexchange.org
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Craig's House
Interested in
trying out a NEW program with your child diagnosed with autism?
Margo Johnson has recently finished the pilot of the program
"Craig's House", which teaches basic life skills (e.g. tying
shoelaces, getting dressed, and making a bed) in a fun and
interactive environment. Margo is currently looking for
families interested in testing out the new program in their
homes.
Check out the web page
http://staff.ltc.arizona.edu/mttrm/internship/margoj/index.cfm
For more information and to find out if
this program may help your child
contact Margo at
margoj@email.arizona.edu or
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Specialized
Training of Military Parents (STOMP)
has
developed a
TRI FAT Listserv
For families
who are attempting to obtain funding through TRICARE for a
variety of Autism treatments, to connect with each other,
sharing information and support
Join our list by
sending a blank email to
Tri-Fat-subscribe@topica.com
For more information about resources
available through STOMP, please contact them at 1-800-5-parent
or
stomp@washingtonpave.com
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Arizona Department
of Education
Exceptional Student Services
has
developed a
Parent Satisfaction
Survey
This is an
on-line web-based application that parents use to submit their
responses. Confidential user IDs and passwords will be
provided by the agency asking the parent to complete the survey.
All responses will be confidential.
To view a list of
participating agencies and to look at a sample Parent
Satisfaction Survey go to
http://www.ade.az.gov/ess/whatsnew/
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Raytheon Parents of
Dependents with Special Needs
holds
Discussion and
Support Group Meetings
3rd Tuesday
of every month
6:00 - 8:00 pm
Coco's
6095 E Broadway
(across from Park Place)
Networking, Speakers,
Discussion Group
For more information
please contact
Mary-Lisa Orth at 794-3866 or
email her at
mjorth@Raytheon.com
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NEA
is pleased
to announce a new guide for educators
"The Puzzle of Autism"
To receive your complimentary copy,
email
gapsinfo@nea.org
or go to
www.nea.org/specialed to download a copy
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Click below for an
Parent Action tip sheet
on
Effective Parenting: Parent-School Communication
Tips for parents when working with their
child, his/her teacher and the school to positively influence
their child's success.
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Family Voices
has a
web site at
http://www.familyvoices.org/fc/CurrentFC.pdf
An informative newsletter by Family Voices, a
national grassroots group
advocating on behalf of children and youth with special health
care
needs and their families can be found at the web site below
They have many resources in Spanish.
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Autism Society of
America Pima County Chapter
holds
Adult Aspergers
Support Group Meetings
3rd Wednesday
of every month
6:30 - 8:30 pm
Autism Center
Conference Room
1002 N Country Club
Bring a refreshment to
share. Email Jerry Newport at
wholphin48@hotmail.com
for more information
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Autism/Asperger's
Research Program
has a
web site at
http://www.eas.asu.edu/~autism/
with general
information as well as information on activities, conferences,
etc in the Phoenix area
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