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Please look immediately below the
Web Resource section for information on current scholarships,
applications, etc.
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Pilot Parents of
Southern Arizona
is
providing
One to One Consultations
on
Your Child's IEP
By Appointment
This is a time
where most of your questions or issues can be addressed by an
educational consultant. Schedule your appointment by
calling the numbers below. If you are not in Pima County,
a phone conference can be held using our toll free number.
Call 520-324-3157 for English appointment
Call 520-324-3155 for Spanish appointment
Toll Free: 1-877-365-7220
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Web Resources for
Special Needs Resources
Arizona
Center for Disability Law
www.azdisabilitylaw.org
(pull down the
self-advocacy guides)
Arizona
Deafblind Project
http://www.azdb.net/
(a resource for parents of children who have combined
vision and hearing losses)
Arizona
Department of Education
Parent Information Network
(includes links to their
quarterly newsletter)
www.ade.az.gov/ess/pinspals/
Arizona Hands
& Voices
www.azhv.org
(support for families of children who are deaf or hard of
hearining)
Bella Online
Special Education Site
http://www.bellaonline.com/site/specialeducation
Being
uniquely gifted
www.gotothebug.com
Brain Injury Association of Arizona
http://www.biaaz.org/bia/index.aspx
Children's
Clinics for Rehabilitative Services
www.childrensclinics.org
Council for
Exceptional Children
www.cec.sped.org
Enhancing
Arizona's Parent Networks
www.azeapn.org
Families and
Advocates, Partners for Education (FAPE)
www.fape.org
IDEA Website
http://idea.ed.gov
Juvenile Diabetes Research
Foundation Southern Arizona Branch
www.jdrf.org/southernarizona
MIKID (Mentally Ill Kids in
Distress)
www.MIKID.org
National
Bullying Prevention Website
www.pacerkidsagainstbullying.org
National
Center on Secondary Education and Transition
www.ncset.org
National Down
Syndrome Congress
www.ndsccenter.org
National Early Childhood Technical
Assistance Center
www.nectac.org
NICHCY
www.nichcy.org
PlayAbility
Toys (Special Toys for Special Kids)
http://www.playabilitytoys.com/
SANDS
(Southern Arizona Network for Downs Syndrome)
www.sandsaz.org
This site includes a
link to their calendar of events
Tucson
Exceptional Parent Project
www.theepp.org
Wrightslaw
www.wrightslaw.com
Yellow Pages
for Kids
(help finding services)
www.yellowpagesforkids.com/help/az.htm
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Teen
Congress/Youth Advisory Committee Members
Wanted
The goals of
the YAC/TTC are to provide youth/student input on policies and
programs designed to improve the quality of education throughout
Pima County and to engage in activities which foster leadership,
citizenship and the best educational opportunities for all
Tucson youth.
The YAC/TTC
has begun its recruitment for new members and, thus, we seed a
cross section of youth representative of the diversity of our
community. The YAC/TTC is also interestedin a broad range
of students with different skills and abilities as well as
interestes.
Recruitment is
open.
The first meeting is Wednesday, September 1, 2010, 6-7:30pm
at the Joel D Valdez Main Library, 101 N Stone, Lower Lever Meeting Room.
Applications
for service can be downloaded at
www.tucsonaz.gov/mec
and mailed to
metcom@theriver.com
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Reading
Tutor
PLEASE NOTE: PPSA received the
following information regarding a summer tutoring opportunity.
While we do not endorse or recommend any tutors individually we
wanted to share this information as many of you may be looking
for resources for the summer. Below is the copy of the
flyer we received:
Is your son or
daughter having difficulty learning to read? Are you
interested in summer tutoring?
- I am
a reading specialist who works with children with severe
learning disabilities
- I have an MA from the University of Arizona in special
education.
- I have been teching reading for 5+ years and have seen
significant improvements in my students' reading
abilities.
- I enjoy working with children and helping them get
excited about reading.
- I will be offering flexible hours an fees for tutoring
throughout the summer
I would be
happy to answer any questions that you have. I can be
reached at
250-7076.
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Special
Needs Information & Response
Voluntary Registration
People with
disabilities can request assistance in case of an evacuation by
complete a voluntary registration form and returning it to the
Office of Emergency Management and Homeland Security.
To get a
registration form/brochure please contact the
Pima County
Office of Emergency Management and Homeland Security
at
520-798-0600
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Supplemental
Security Income (SSI) for Children and Youth with Disabilities
The Supplemental Security Income (SSI)
program remains an important source of financial support for
low-income families of children with special health care needs
and disabling conditions. In most states, SSI eligibility also
qualifies children for the state Medicaid program, providing
access to health care services. The Social Security
Administration (SSA), which administers the SSI program,
considers a child disabled under SSI if there is a medically
determinable physical or mental impairment or combination of
impairments that results in marked and severe functional
limitations. The impairment(s) must be expected to result in
death or have lasted or be expected to last for a continuous
period of at least 12 months. The income and assets of
families of children with disabilities are also considered when
determining financial eligibility. When an individual with a
disability becomes an adult at 18 years of age, the SSA
considers only the individual's income and assets. The SSA
considers an adult to be disabled if there is a medically
determinable impairment (or combination of impairments) that
prevents substantial gainful activity for at least 12 continuous
months. SSI benefits are important for youth with chronic
conditions who are transitioning to adulthood.
Information on SSI resources can be found at
the Social Security Administration Web site:
www.ssa.gov
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FAS Parent
Support Group
First Friday
of the Month
DDD Community
Resource Center
4710 E 29th Street, Building #10 (inservice room)
(Southeast cornet of Swan & 29th)
Tucson, AZ
For more information
and initial free screening call
Teresa Kellerman (520) 296-9172. |
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A new support group is
forming in Tucson
Mended Little
Hearts
(a program of The
Mended Hearts, Inc.)
Mended Little Hearts is a pediatric support program dedicated to
inspiring hope in those who care for the littlest heart patients
of all. The core goal is to connect families in crisis
with others who have survived the shock of learning a child has
a heart defect/heart disease, navigated the maze of medical
decisions and procedures, and mapped out a plan for the future.
Meetings are held the
first Tuesday of the month
6:00 pm
University Medical Center
Dining Room E (located in the cafeteria)
For more information please
contact Vanessa West at 520-406-5655
or email
TucsonAz@mendedlittlehearts.org
NOTE: Phoenix is
also forming a chapter. For information on their
planning/meetings, etc., please contact Kym Vierthaler at
kym.heartmom@yahoo.com or 480-895-8752.
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Sonoran UCEDD
Center of
Excellence in Developmental Disabilities Education, Research and
Services
is developing a
Southern Arizona
Person Centered Planning Model Program
The program will train
youth and their families to use a comprehensive and personalized
approach in planning and mobilizing services and natural
community supports to meet their needs. The initiative
will also build on the strength of many stakeholders in
education, developmental disability services, behavioral health
and employment to develop strategies for successful adult
living.
The demonstration
project will initially work with 60 youth with disabilities who
are leaving the public school system to exercise their own
choices about living arrangements, work life, social networks
and services.
Some of the activities
of this program include
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Information
sessions for youth and their families
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Ongoing
collaboration with stakeholders
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A person centered
Planning training presented by Michael Smull
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A Framework for
Accomplishment training presented by John and Connie O'Brien
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Youth being active
participants in their Person Centered Planning process
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The development of
a Caregiver Assessment Tool, a Consumer Preference Tool, and
a Community Tools Curriculum
For more information on
this program or for questions on how youth, community network or
provider organizations can participate, please contact:
Kristie Melkers
Senior Program Coordinator
SA Person Centered Planning Model Program
520-626-2207
kmelkers@email.arizona.edu
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CHADD
Children and Adults
with Attention-Deficit /Hyperactivity Disorders
has a new support group
in Southeast Tucson
They holds meetings on the
3rd Thursday of each month from
7:00 pm - 8:30 pm
at
The Episcopal Church of
Saint Matthews -- Parish Hall
9701 E Old Spanish Trail
Tucson, Arizona
For more
information call 520-296-8572
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Challenger Little
League Registration
download a
registration form at
www.tucsonchallenger.org
Challenger Little League consists
of children and young adults with various physical and mental
challenges. The league is designed for the players to
succeed in games of baseball and enjoy all the benefits the
Little League has to offer. There is also a Special
Olympics Softball program for players 21 and older.
The season runs from March through
mid-June
Games are held at the Field of Dreams at Kino and 36th Street
For more
information go to the website above
or call Kathy Getman at 298-3639 or email her at
KGetman@cox.net
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WrightsLaw
is now
offering
A WebEx Training
Center
containing a library
of training programs
Wrightslaw is
developing a library of recorded multi-media training programs
to help you become a more effective advocate for children with
disabilities. These WebEx programs are available 24/7 on
your computer.
For information on this service go to their website
http://www.wrightslaw.com/webex/index.htm
There you will
find links to download the free WebEx player and information on
available trainings and their cost.
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Military Parents of
Special Needs Kids
Support Group
for
parents in the military with children with who have special
needs
holds meetings on the
2nd Saturday of each month from
2:00 pm - 4:00 pm
For more
information contact
Rebecca Johnson at 520-269-6257
or
email her at
ndair4ce@cox.net .
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Ultima Self-Defense
and Fitness
is now
offering
Self-Defense/Physical Fitness Classes
for people
with developmental disabilities
Ultima
Self-Defense and Fitness
7649 E Speedway Blvd
Tucson, AZ
Various days and
times. Based on demand classes may be added or canceled,
please call for more information. Classes are taught by
certified Krav Maga instructors who have experience teaching
people with developmental disabilities.
For more information
contact Toni Posvistak at (520) 721-2348.
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Online
Equipment Exchange Program:
Arizona Assistive
Technology Equipment Exchange
or
azATEXchange (for short)
This is a web-based
"classified ad" format that allows individuals (not vendors) to
post assistive technology items for sale of donation or to
search for needed items. The goal is to put the AT
equipment that is not currently being used into the hands of
someone who can benefit from it.
www.azatexchange.org
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Autism/Asperger
Support Groups
East Side
Autism support group
for
parents, family, and friends of persons/children with ASD
4th Monday of the month from 6-7pm
at the Wilmot Library
Contact Wendy at
wendywartz@msn.com
Asperger
support group
for
parents, and relative of persons/children with AS
2nd Thursday of the month from 7-9pm
at the TAFA Center
Contact Regina at
520-401-4801
P.A.S.S.
Autism support group
for
parents of children with ASD
2nd Tuesday of the month at 6:30pm
at the St Mark's United Methodist Church (La Canada and Magee)
Contact Bridgett at 481-5105
Spanish
Speaking Autism support group
for
families of persons/children with ASD
2nd Thursday of the month at 6pm
at the 2nd Street DDD location (3655 E 2nd Street)
Contact Norma Torres at 520-318-3510 ext 126
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Craig's House
Interested in
trying out a NEW program with your child diagnosed with autism?
Margo Johnson has recently finished the pilot of the program
"Craig's House", which teaches basic life skills (e.g. tying
shoelaces, getting dressed, and making a bed) in a fun and
interactive environment. Margo is currently looking for
families interested in testing out the new program in their
homes.
Check out the web page
http://staff.ltc.arizona.edu/mttrm/internship/margoj/index.cfm
For more information and to find out if
this program may help your child
contact Margo at
margoj@email.arizona.edu or
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Specialized
Training of Military Parents (STOMP)
has
developed a
TRI FAT Listserv
For families
who are attempting to obtain funding through TRICARE for a
variety of Autism treatments, to connect with each other,
sharing information and support
Join our list by
sending a blank email to
Tri-Fat-subscribe@topica.com
For more information about resources
available through STOMP, please contact them at 1-800-5-parent
or
stomp@washingtonpave.com
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Arizona Department
of Education
Exceptional Student Services
has
developed a
Parent Satisfaction
Survey
This is an
on-line web-based application that parents use to submit their
responses. Confidential user IDs and passwords will be
provided by the agency asking the parent to complete the survey.
All responses will be confidential.
To view a list of
participating agencies and to look at a sample Parent
Satisfaction Survey go to
http://www.ade.az.gov/ess/whatsnew/
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Raytheon Parents of
Dependents with Special Needs
holds
Discussion and
Support Group Meetings
3rd Tuesday
of every month
6:00 - 8:00 pm
Coco's
6095 E Broadway
(across from Park Place)
Networking, Speakers,
Discussion Group
For more information
please contact
Mary-Lisa Orth at 794-3866 or
email her at
mjorth@Raytheon.com
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Parents/Families of Children
with Special Health Care Needs who
are 0-3
The Arizona Department of Health Services,
Office for Children with Special Health Care Needs is looking
for Parents to join a Parent-led Community Action Council.
Click
here
or below for more information.
Information on the Parent-led Community
Action Council
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NEA
is pleased
to announce a new guide for educators
"The Puzzle of Autism"
To receive your complimentary copy,
email
gapsinfo@nea.org
or go to
www.nea.org/specialed to download a copy
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Click below for an
Parent Action tip sheet
on
Effective Parenting: Parent-School Communication
Tips for parents when working with their
child, his/her teacher and the school to positively influence
their child's success.
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Family Voices
has a
web site at
http://www.familyvoices.org/fc/CurrentFC.pdf
An informative newsletter by Family Voices, a
national grassroots group
advocating on behalf of children and youth with special health
care
needs and their families can be found at the web site below
They have many resources in Spanish.
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Autism Society of
America Pima County Chapter
holds
Adult Aspergers
Support Group Meetings
3rd Wednesday
of every month
6:30 - 8:30 pm
Autism Center
Conference Room
1002 N Country Club
Bring a refreshment to
share. Email Jerry Newport at
wholphin48@hotmail.com
for more information
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Autism/Asperger's
Research Program
has a
web site at
http://www.eas.asu.edu/~autism/
with general
information as well as information on activities, conferences,
etc in the Phoenix area
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