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2600 North Wyatt Drive

Tucson, Arizona 85712

Phone: (520) 324-3150

Fax: (520) 324-3152

Email

 ppsa@pilotparents.org

Hours 9AM-5PM M-F

 

 

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Please look immediately below the Web Resource section for information on current scholarships, applications, etc.
 

Pilot Parents of Southern Arizona

is providing

One to One Consultations
on
 Your Child's IEP

By Appointment
 

This is a time where most of your questions or issues can be addressed by an educational consultant.  Schedule your appointment by calling the numbers below.  If you are not in Pima County, a phone conference can be held using our toll free number.

Call 520-324-3157 for English appointment

Call 520-324-3155 for Spanish appointment

Toll Free: 1-877-365-7220

Web Resources for Special Needs Resources

Arizona Center for Disability Law
www.azdisabilitylaw.org
(pull down the self-advocacy guides)

Arizona Deafblind Project
http://www.azdb.net/

(a resource for parents of children who have combined vision and hearing losses)

Arizona Department of Education
Parent Information Network
(includes links to their quarterly newsletter)
www.ade.az.gov/ess/pinspals/

Arizona Hands & Voices
www.azhv.org
(support for families of children who are deaf or hard of hearining)


Bella Online Special Education Site
http://www.bellaonline.com/site/specialeducation

Being uniquely gifted
www.gotothebug.com

Brain Injury Association of Arizona
http://www.biaaz.org/bia/index.aspx

Children's Clinics for Rehabilitative Services
www.childrensclinics.org

Council for Exceptional Children
www.cec.sped.org

Enhancing Arizona's Parent Networks
www.azeapn.org

Families and Advocates, Partners for Education (FAPE)
www.fape.org

IDEA Website
http://idea.ed.gov

Juvenile Diabetes Research Foundation Southern Arizona Branch
www.jdrf.org/southernarizona

MIKID (Mentally Ill Kids in Distress)
www.MIKID.org

National Bullying Prevention Website
www.pacerkidsagainstbullying.org

National Center on Secondary Education and Transition
www.ncset.org

National Down Syndrome Congress
www.ndsccenter.org

National Early Childhood Technical Assistance Center
www.nectac.org

NICHCY
www.nichcy.org

PlayAbility Toys (Special Toys for Special Kids)
http://www.playabilitytoys.com/

SANDS (Southern Arizona Network for Downs Syndrome)
www.sandsaz.org
This site includes a link to their calendar of events

Tucson Exceptional Parent Project
www.theepp.org

Wrightslaw
www.wrightslaw.com

Yellow Pages for Kids
 (help finding services)
www.yellowpagesforkids.com/help/az.htm
 

 

Teen Congress/Youth Advisory Committee Members
Wanted

The goals of the YAC/TTC are to provide youth/student input on policies and programs designed to improve the quality of education throughout Pima County and to engage in activities which foster leadership, citizenship and the best educational opportunities for all Tucson youth.

The YAC/TTC has begun its recruitment for new members and, thus, we seed a cross section of youth representative of the diversity of our community.  The YAC/TTC is also interestedin a broad range of students with different skills and abilities as well as interestes.

Recruitment is open.
 The first meeting is Wednesday, September 1, 2010, 6-7:30pm
 at the Joel D Valdez Main Library, 101 N Stone, Lower Lever Meeting Room.

Applications for service can be downloaded at
www.tucsonaz.gov/mec
and mailed to
metcom@theriver.com

 

Reading Tutor

PLEASE NOTE: PPSA received the following information regarding a summer tutoring opportunity.  While we do not endorse or recommend any tutors individually we wanted to share this information as many of you may be looking for resources for the summer.  Below is the copy of the flyer we received:

Is your son or daughter having difficulty learning to read?  Are you interested in summer tutoring?

- I am a reading specialist who works with children with severe learning disabilities
- I have an MA from the University of Arizona in special education.
- I have been teching reading for 5+ years and have seen significant improvements in my students' reading abilities.
- I enjoy working with children and helping them get excited about reading.
- I will be offering flexible hours an fees for tutoring throughout the summer

I would be happy to answer any questions that you have.  I can be reached at
250-7076.

 

Special Needs Information & Response
Voluntary Registration

People with disabilities can request assistance in case of an evacuation by complete a voluntary registration form and returning it to the Office of Emergency Management and Homeland Security.

To get a registration form/brochure please contact the

Pima County Office of Emergency Management and Homeland Security
at
520-798-0600

 

Supplemental Security Income (SSI) for Children and Youth with Disabilities

The Supplemental Security Income (SSI) program remains an important source of financial support for low-income families of children with special health care needs and disabling conditions. In most states, SSI eligibility also qualifies children for the state Medicaid program, providing access to health care services. The Social Security Administration (SSA), which administers the SSI program, considers a child disabled under SSI if there is a medically determinable physical or mental impairment or combination of impairments that results in marked and severe functional limitations. The impairment(s) must be expected to result in death or have lasted or be expected to last for a continuous period of at least  12 months. The income and assets of families of children with disabilities are also considered when determining financial eligibility. When an individual with a disability becomes an adult at 18 years of age, the SSA considers only the individual's income and assets. The SSA considers an adult to be disabled if there is a medically determinable impairment (or combination of impairments) that prevents substantial gainful activity for at least 12 continuous months. SSI benefits are important for youth with chronic conditions who are transitioning to adulthood.

Information on SSI resources can be found at the Social Security Administration Web site: www.ssa.gov
 

FAS Parent Support Group

First Friday of the Month

DDD Community Resource Center
4710 E 29th Street, Building #10 (inservice room)
(Southeast cornet of Swan & 29th)
Tucson, AZ

For more information and initial free screening call
 Teresa Kellerman (520) 296-9172.

 


A new support group is forming in Tucson

Mended Little Hearts
(a program of The Mended Hearts, Inc.)


Mended Little Hearts is a pediatric support program dedicated to inspiring hope in those who care for the littlest heart patients of all.  The core goal is to connect families in crisis with others who have survived the shock of learning a child has a heart defect/heart disease, navigated the maze of medical decisions and procedures, and mapped out a plan for the future.

Meetings are held the first Tuesday of the month
6:00 pm
University Medical Center
Dining Room E (located in the cafeteria)

For more information please contact Vanessa West at 520-406-5655
or email
TucsonAz@mendedlittlehearts.org

NOTE:  Phoenix is also forming a chapter.  For information on their planning/meetings, etc., please contact Kym Vierthaler at kym.heartmom@yahoo.com or 480-895-8752.
 

Sonoran UCEDD
Center of Excellence in Developmental Disabilities Education, Research and Services

is developing a

Southern Arizona Person Centered Planning Model Program

The program will train youth and their families to use a comprehensive and personalized approach in planning and mobilizing services and natural community supports to meet their needs.  The initiative will also build on the strength of many stakeholders in education, developmental disability services, behavioral health and employment to develop strategies for successful adult living.

The demonstration project will initially work with 60 youth with disabilities who are leaving the public school system to exercise their own choices about living arrangements, work life, social networks and services.

Some of the activities of this program include

  • Information sessions for youth and their families

  • Ongoing collaboration with stakeholders

  • A person centered Planning training presented by Michael Smull

  • A Framework for Accomplishment training presented by John and Connie O'Brien

  • Youth being active participants in their Person Centered Planning process

  • The development of a Caregiver Assessment Tool, a Consumer Preference Tool, and a Community Tools Curriculum

For more information on this program or for questions on how youth, community network or provider organizations can participate, please contact:

Kristie Melkers
Senior Program Coordinator
SA Person Centered Planning Model Program
520-626-2207
kmelkers@email.arizona.edu

 

CHADD
Children and Adults with Attention-Deficit /Hyperactivity Disorders

has a new support group in Southeast Tucson
 

They holds meetings on the
3rd Thursday of each month from
7:00 pm - 8:30 pm

at

The Episcopal Church of Saint Matthews -- Parish Hall
9701 E Old Spanish Trail
Tucson, Arizona

For more information call 520-296-8572

 

Challenger Little League Registration

download a registration form at www.tucsonchallenger.org
 

Challenger Little League consists of children and young adults with various physical and mental challenges.  The league is designed for the players to succeed in games of baseball and enjoy all the benefits the Little League has to offer.  There is also a Special Olympics Softball program for players 21 and older.

The season runs from March through mid-June
Games are held at the Field of Dreams at Kino and 36th Street

For more information go to the website above
 or call Kathy Getman at 298-3639 or email her at KGetman@cox.net

 

WrightsLaw

is now offering

A WebEx Training Center
containing a library of training programs

Wrightslaw is developing a library of recorded multi-media training programs to help you become a more effective advocate for children with disabilities.  These WebEx programs are available 24/7 on your computer.

For information on this service go to their website
http://www.wrightslaw.com/webex/index.htm

There you will find links to download the free WebEx player and information on available trainings and their cost.

 

Military Parents of Special Needs Kids
Support Group

for parents in the military with children with who have special needs

holds meetings on the
2nd Saturday of each month from
2:00 pm - 4:00 pm

For more information contact
 Rebecca Johnson at 520-269-6257
 or email her at ndair4ce@cox.net .

 

Ultima Self-Defense and Fitness

is now offering

Self-Defense/Physical Fitness Classes
for people with developmental disabilities

Ultima Self-Defense and Fitness
7649 E Speedway Blvd
Tucson, AZ

Various days and times.  Based on demand classes may be added or canceled, please call for more information.  Classes are taught by certified Krav Maga instructors who have experience teaching people with developmental disabilities.

For more information contact Toni Posvistak at (520) 721-2348.
 

Online Equipment Exchange Program:

Arizona Assistive Technology Equipment Exchange
or
azATEXchange (for short)

This is a web-based "classified ad" format that allows individuals (not vendors) to post assistive technology items for sale of donation or to search for needed items.  The goal is to put the AT equipment that is not currently being used into the hands of someone who can benefit from it.

www.azatexchange.org

 

Autism/Asperger Support Groups

East Side Autism support group
for parents, family, and friends of persons/children with ASD
4th Monday of the month from 6-7pm
 at the Wilmot Library
Contact Wendy at wendywartz@msn.com

Asperger support group
for parents, and relative of persons/children with AS
2nd Thursday of the month from 7-9pm
 at the TAFA Center
Contact Regina at 520-401-4801

P.A.S.S. Autism support group
for parents of children with ASD
2nd Tuesday of the month at 6:30pm
 at the St Mark's United Methodist Church (La Canada and Magee)
Contact Bridgett at 481-5105

Spanish Speaking Autism support group
for families of persons/children with ASD
2nd Thursday of the month at 6pm
 at the 2nd Street DDD location (3655 E 2nd Street)
Contact Norma Torres at 520-318-3510 ext 126

 


Craig's House

Interested in trying out a NEW program with your child diagnosed with autism?  Margo Johnson has recently finished the pilot of the program "Craig's House", which teaches basic life skills (e.g. tying shoelaces, getting dressed, and making a bed) in a fun and interactive environment.  Margo is currently looking for families interested in testing out the new program in their homes.

Check out the web page
http://staff.ltc.arizona.edu/mttrm/internship/margoj/index.cfm

For more information and to find out if this program may help your child
contact Margo at margoj@email.arizona.edu or 520-909-3537

 

Specialized Training of Military Parents (STOMP)

has developed a

TRI FAT Listserv

For families who are attempting to obtain funding through TRICARE for a variety of Autism treatments, to connect with each other, sharing information and support

 

Join our list by sending a blank email to
 Tri-Fat-subscribe@topica.com

For more information about resources available through STOMP, please contact them at 1-800-5-parent or stomp@washingtonpave.com
 

 

Arizona Department of Education
Exceptional Student Services

has developed a

Parent Satisfaction Survey

This is an on-line web-based application that parents use to submit their responses.  Confidential user IDs and passwords will be provided by the agency asking the parent to complete the survey.  All responses will be confidential.

To view a list of participating agencies and to look at a sample Parent Satisfaction Survey go to
http://www.ade.az.gov/ess/whatsnew/
 

Raytheon Parents of Dependents with Special Needs

holds

Discussion and Support Group Meetings

3rd Tuesday of every month
6:00 - 8:00 pm
 

Coco's
6095 E Broadway
(across from Park Place)

Networking, Speakers, Discussion Group

For more information please contact
Mary-Lisa Orth at 794-3866 or
email her at mjorth@Raytheon.com
 

Parents/Families of Children
 with Special Health Care Needs who
are 0-3

The Arizona Department of Health Services, Office for Children with Special Health Care Needs is looking for Parents to join a Parent-led Community Action Council.

Click here or below for more information.

Information on the Parent-led Community Action Council

 

NEA

is pleased to announce a new guide for educators

"The Puzzle of Autism"

To receive your complimentary copy,
 email gapsinfo@nea.org
or go to
  www.nea.org/specialed to download a copy
 

Click below for an Parent Action tip sheet
on

Effective Parenting: Parent-School Communication

Tips for parents when working with their child, his/her teacher and the school to positively influence their child's success.
 

Family Voices

has a web site at

http://www.familyvoices.org/fc/CurrentFC.pdf
 

An informative newsletter by Family Voices, a national grassroots group
advocating on behalf of children and youth with special health care
needs and their families can be found at the web site below
They have many resources in Spanish.
 

Autism Society of America Pima County Chapter

holds

Adult Aspergers Support Group Meetings

3rd Wednesday of every month
6:30 - 8:30 pm
 

Autism Center Conference Room
1002 N Country Club

Bring a refreshment to share.  Email Jerry Newport at wholphin48@hotmail.com for more information
 

Autism/Asperger's Research Program

has a web site at

http://www.eas.asu.edu/~autism/

with general information as well as information on activities, conferences, etc in the Phoenix area
 

 

Back Home Next

Take you child to the library often and check out a variety of age-appropriate reading materials.

 


Click here
for information on
Pilot Parent's IEP
Protocol

 

 

 

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